Selected Publications

Pathways of care: a qualitative study of barriers and facilitators to engaging dementia care among underserved and minority populations in the US and Germany.

Ketchum, F.B., Monsees, J., Kim, A.J., Schmachtenberg, T., Kind, A., Shah, M., Hoffmann, W., Thyrian, J.R, & Gilmore-Bykovskyi, A.L. Aging & Mental Health.(Accepted)

Preliminary identification of observable responses to person-centered caregiving approaches among persons living with dementia: An ethnographic approach.

Staehler, M., Benson, C., Block, L., Roberts, T., & Gilmore-Bykovskyi, A.L. The Gerontologist. (In Press)

Interventions for Women Veterans with Mental Health Care Needs: Findings from a Scoping Review.

Orshak, J., Alexander, L., Gilmore-Bykovskyi, A.L., & Lauver, D. Journal of Clinical and Translational Science. (2022). PMCID Journal: Exempt – Not a Peer-Reviewed Publication.

“There’s Not Much We Can Do…” Researcher-Level Barriers to the Inclusion of Underrepresented Participants in Health Research.

Passmore, S., Kisicki, A., Gilmore-Bykovskyi, A., Green-Harris, G., & Farrar Edwards, D. Journal of Clinical and Translational Science. (2021). (In Press)

Barriers to identifying residents with dementia for embedded pragmatic trials: A call to action

McCreedy, E., Gilmore-Bykovskyi, A., Dorr, D.A., Lima, J., McCarthy, E., Meyers, D., Platt, R., Vydiswaran, V.G.V., Bynum, J.P.W. Journal of the American Geriatrics Society (2022). (In Press)

The intersections of structural racism and ageism in the time of Covid-19: A call to action for gerontological nursing science.

Robinson-Lane, S., Block, L., Cacchione, P. Bowers, B., & Gilmore-Bykovskyi, A.L Research in Gerontological Nursing (2021). (In Press)

Dementia caregivers’ experiences engaging supportive services while residing in under-resourced areas.

Cotton, Q., Kim, A., Block, L., Kind, A., Thyrian, R., Monsees, J., Shah, M.N., & Gilmore-Bykovskyi, A. Journal of Alzheimer’s Disease (2021). (In Press)

Traversing the aging research and health equity divide: Toward intersectional frameworks of research justice and participation.

Gilmore-Bykovskyi, A.L., Croff, R., Glover, C., Jackson, J., Resendez, J., Perez, A., Zuelsdorff, M., Green-Harris, G., & Manly J.J. The Gerontologist. (2021).(One of 30 Abstracts Selected for Submission to Special Issue) (Epub Ahead of Print).

Stronger together: The case for multidisciplinary tenure track faculty in academic nursing.

Tubbs-Cooley, H., Lavin, R.P., Lyndon, A., Anderson J., Baernholdt, M., Berry, P., Bosse, J.D., Mahoney, A.D., Gibbs, K.D., Donald, E.E., Donevant, S., Dorsen, C., Fauer, A., French, R., Gilmore-Bykovskyi, A., Greene, M., Morse, B.L., Patil, C.L., Rainbow, J., Ruppar, T.M., Trotter, T.L., Umberfield, E., Walker, R.K., Wright, M.L., & Friese, C.R. Nursing Outlook. (2021). (Accepted)

One quarter of Medicare hospitalizations in patients with systemic lupus erythematosus readmitted within thirty days.

Bartels, C.M., Chodara, A., Chen, Y., Wang, X., Powell, R., Shi, F., Schletzbaum, M., Sheehy, A., Kaiksow, F., Gilmore-Bykovskyi, A.L., Garg, S., Yu, M., & Kind, A. Seminars in Arthritis and Rheumatism. (2021).(In Press)

Impact of a rheumatology clinic protocol on tobacco cessation quit line referrals.

Bartels, C.M., Johnson, L., Ramly, E., Panyard, D., Gilmore-Bykovskyi, A.L., Johnson, H., McBride, P., Li, Z., Sampene, E., Lauver, D.R., Lewicki, K., & Piper, M.E. Arthritis Care & Research. 2021. (In Press)

The importance of conceptualizing and defining episodes of lucidity.

Gilmore-Bykovskyi, A.L., Block, L., Benson, C. & Griffin, J.M. Journal of Gerontological Nursing. 2021.(In Press)

Diverse perspectives on hospitalisation events among people with dementia: Protocol for a multisite qualitative study.

Gilmore-Bykovskyi, A.L., Cotton, Q., Block, L., Morgan, J. BMJ Open, 11:e043016. 2021.

Bridging the hospital-skilled nursing facility information continuity divide.

Gilmore-Bykovskyi, A.L., Block, L., & Kind, A.J.H. JAMA Network Open, 4(1):e2035040. 2021.

A process-based approach to exploring the information behavior of informal caregivers of people living with dementia.

Rutkowski, R.A., Ponnala, S., Younan, L., Weiler, D.T., Gilmore-Bykovskyi, A., & Werner, N. International Journal of Medical Informatics. 2021. Online ahead of print.

The urgency of justice in research: Beyond COVID-19.

Gilmore-Bykovskyi, A.L., Jackson, J.D., & Wilkins, C.H. Trends in Molecular Medicine. 2020. Online ahead of print.

Ethical and methodological considerations for evaluating participant views on Alzheimer’s and dementia research.

Benson, C., Friz, A., Block, L., Mullen, S., & Gilmore-Bykovskyi, A. Journal of Empirical Research on Human Research Ethics. 2020. Online ahead of print.

Racial/Ethnic differences in health-related quality of life in persons with and without dementia.

Hayes-Larson, E., Mobley, T.M., Gilmore-Bykovskyi, A.L., Shaw, C., Karlamanga, A., Manly, J.J., & Mayeda, E.R. Journal of the American Geriatrics Society. 2020. Online ahead of print.

Tailoring research recruitment for acute care settings: Recommendations from people with dementia and their caregivers.

Friz, A., Benson, C., Mullen, S., Block, L., & Gilmore-Bykovskyi, A. Alzheimer’s Disease and Associated Disorders. 2020. Online ahead of print. PMCID: PMC Journal – In process.

Exploring dementia family caregivers’ everyday use and appraisal of technological supports.

Block, L., Gilmore-Bykovskyi, A. L., Jolliff, A., Mullen, S., & Werner, N. E. Geriatric Nursing. 2020. PMCID: PMC Journal – In Process.

Dementia in people with a Turkish migration background – experiences and utilization of healthcare services.

Monsees, J., Schmachtenberg, T., Hoffman, W., Kind, A., Gilmore-Bykovskyi, A., Kim, A.J., & Thyrian, J.R. Journal of Alzheimer’s Disease. 2020. Accepted.

Discharge communication of dementia-related neuropsychiatric symptoms and care management strategies during hospital to skilled nursing facility transitions.

Gilmore-Bykovskyi, A. L., Hovanes, M., Mirr, J., & Block, L. Journal of Geriatric Psychiatry and Neurology. 2020. Accepted.

Thirty-day re-observation, chronic reobservation, and neighborhood disadvantage.

Sheehy, A.M., Powell, R.W., Kaiksow, F.A., Buckingham, W.R., Bartels, C.M., Birstler, J., Yu, M., Gilmore-Bykovskyi, A., Shi, F., & Kind, A.J.H. Mayo Clinic Proceedings. 2020. Accepted.

Emergency regulatory relief in the era of COVID-19: Waiving Medicare’s three midnight requirement for post-acute skilled nursing facility care

Sheehy, A. M., Locke, C. F. S., Kaiksow, F. A., Powell, R. W., Gilmore-Bykovskyi, A. L., & Kind, A. J. H. Journal of Hospital Medicine. 2020. Accepted.

Likelihood of hospital readmission in medicare advantage and fee-for-service within the same hospital.

Jung, D., DuGoff, E., Smith, M., Palta, M., Gilmore-Bykovskyi, A., & Mullahy, J. Health Services Research. 2020. Online ahead of print.

Efficacy of mealtime interventions for malnutrition and oral intake in persons with dementia: A systematic review.

Borders, J. C., Blanke, S., Johnson, S., Gilmore-Bykovskyi, A., & Rogus-Pulia, N. Alzheimer Disease & Associated Disorders – An International Journal. 2020. Online ahead of print. PMCID: PMC Journal – In Process.

“Hopes and wishes”: Goals of high-need, high-cost older patients and their caregivers.

Wyman, M.F., Liebzeit, D., Voils, C.I., Bowers, B.J., Chapman, E.N., Gilmore-Bykovskyi, A.L., Kennelty, K.A., Kind, A.J., Loosen, J., Rogus-Pulia, N., & Dattalo, M. Patient Education and Counseling. 2020; 103(7):1428-1434. PMCID: PMC7286795.

Features of primary care practice influencing acute care use by persons with dementia: A multiple-perspective qualitative study.

Beck, A.P, Jacobsohn, G.C., Hollander, M., Gilmore-Bykovskyi, A.L., Werner, N., & Shah, M.N. Dementia. 2020. Online ahead of print. NIHMSID: NIHMS1564057.

Use of direct in-person observation in the care of hospitalized older adults with cognitive impairment: A systematic review.

Gilmore-Bykovskyi AL, Fuhr H, Jin Y, Benson C. J Gerontol Nurs. 2020 May 1;46(5):23-30. doi: 10.3928/00989134-20200313-02. PMID: 32324892

Features of primary care practice influence emergency care-seeking behaviors by caregivers of persons with dementia: A multiple-perspective qualitative study.

Beck AP, Jacobsohn GC, Hollander M, Gilmore-Bykovskyi A, Werner N, Shah MN. Dementia (London). 2020 Feb 12:1471301220905233. doi: 10.1177/1471301220905233. Online ahead of print. PMID: 32050779

In pursuit of meaningful performance measures for postacute care.

Gilmore-Bykovskyi A, Crnich CJ, Kind AJH. JAMA Netw Open. 2019 Dec 2;2(12):e1917558. doi: 10.1001/jamanetworkopen.2019.17558. PMID: 31834389

Recruitment and retention of underrepresented populations in Alzheimer’s disease research: A systematic review.

Gilmore-Bykovskyi AL, Jin Y, Gleason C, Flowers-Benton S, Block LM, Dilworth-Anderson P, Barnes LL, Shah MN, Zuelsdorff M. Alzheimers Dement (N Y). 2019 Nov 19;5:751-770. doi: 10.1016/j.trci.2019.09.018. eCollection 2019. PMID: 31921966

Nomenclature used by family caregivers to describe and characterize neuropsychiatric symptoms.

Gilmore-Bykovskyi A, Mullen S, Block L, Jacobs A, Werner NE. Gerontologist. 2019 Nov 5:gnz140. doi: 10.1093/geront/gnz140. Online ahead of print. PMID: 31688933

Sources of response bias in cognitive self-report items: “Which memory are you talking about?”.

Hill NL, Mogle J, Whitaker EB, Gilmore-Bykovskyi A, Bhargava S, Bhang IY, Sweeder L, Tiwari PA, Van Haitsma K. Gerontologist. 2019 Sep 17;59(5):912-924. doi: 10.1093/geront/gny087.PMID: 30085104

Analgesic use patterns among patients with dementia during transitions from hospitals to skilled nursing facilities.

Gilmore-Bykovskyi AL, Block L, Hovanes M, Mirr J, Kolanowski A. Res Gerontol Nurs. 2019 Mar 1;12(2):61-69. doi: 10.3928/19404921-20190122-01. Epub 2019 Jan 31. PMID: 30703217

Factors influencing emergency care by persons with dementia: Stakeholder perceptions and unmet needs.

Jacobsohn GC, Hollander M, Beck AP, Gilmore-Bykovskyi A, Werner N, Shah MN. J Am Geriatr Soc. 2019 Apr;67(4):711-718. doi: 10.1111/jgs.15737. Epub 2019 Jan 9. PMID: 30624765

Measurement challenges in research with individuals with cognitive impairment.

Kolanowski A, Gilmore-Bykovskyi A, Hill N, Massimo L, Mogle J. Res Gerontol Nurs. 2019 Jan 1;12(1):7-15. doi: 10.3928/19404921-20181212-06. PMID: 30653646

Procedural framework to facilitate hospital-based informed consent for dementia research.

Holden TR, Keller S, Kim A, Gehring M, Schmitz E, Hermann C, Gilmore-Bykovskyi A, Kind AJH. J Am Geriatr Soc. 2018 Dec;66(12):2243-2248. doi: 10.1111/jgs.15525. Epub 2018 Sep 24. PMID: 30246863

Symptoms of apathy and passivity in dementia: A simultaneous concept analysis.

Gilmore-Bykovskyi A, Block L, Johnson R, Goris ED. J Clin Nurs. 2019 Feb;28(3-4):410-419. doi: 10.1111/jocn.14663. Epub 2018 Sep 24. PMID: 30184283

Unstructured clinical documentation reflecting cognitive and behavioral dysfunction: Toward an EHR-based phenotype for cognitive impairment.

Gilmore-Bykovskyi AL, Block LM, Walljasper L, Hill N, Gleason C, Shah MN. J Am Med Inform Assoc. 2018 Sep 1;25(9):1206-1212. doi: 10.1093/jamia/ocy070. PMID: 29947805

Impact of hospital context on transitioning patients from hospital to skilled nursing facility: A grounded theory study.

King BJ, Gilmore-Bykovskyi AL, Roberts TJ, Kennelty KA, Mirr JF, Gehring MB, Dattalo MN, Kind AJH. Gerontologist. 2018 May 8;58(3):521-529. doi: 10.1093/geront/gnx012. PMID: 29746689

Commentary on apathy as a model for investigating behavioral and psychological symptoms in dementia.

Gilmore-Bykovskyi A. J Am Geriatr Soc. 2018 Apr;66 Suppl 1(Suppl 1):S13-S16. doi: 10.1111/jgs.15325. PMID: 29659002

Hospital discharge documentation of a designated clinician for follow-up care and 30-day outcomes in hip fracture and stroke patients discharged to sub-acute care.

Gilmore-Bykovskyi AL, Kennelty KA, DuGoff E, Kind AJH. BMC Health Serv Res. 2018 Feb 9;18(1):103. doi: 10.1186/s12913-018-2907-2. PMID: 29426318

Temporal associations between caregiving approach, behavioral symptoms and observable indicators of aspiration in nursing home residents with dementia.

Gilmore-Bykovskyi AL, Rogus-Pulia N. J Nutr Health Aging. 2018;22(3):400-406. doi: 10.1007/s12603-017-0943-y. PMID: 29484354

Underreporting of gender and race/ethnicity differences in NIH-funded dementia caregiver support interventions.

Gilmore-Bykovskyi A, Johnson R, Walljasper L, Block L, Werner N. Am J Alzheimers Dis Other Demen. 2018 May;33(3):145-152. doi: 10.1177/1533317517749465. Epub 2017 Dec 27. PMID: 29281895

Transitions from hospitals to skilled nursing facilities for persons with dementia: A challenging convergence of patient and system-level needs.

Gilmore-Bykovskyi AL, Roberts TJ, King BJ, Kennelty KA, Kind AJH. Gerontologist. 2017 Oct 1;57(5):867-879. doi: 10.1093/geront/gnw085. PMID: 27174895

Important care and activity preferences in a nationally representative sample of nursing home residents.

Roberts TJ, Gilmore-Bykovskyi A, Lor M, Liebzeit D, Crnich CJ, Saliba D. J Am Med Dir Assoc. 2018 Jan;19(1):25-32. doi: 10.1016/j.jamda.2017.06.028. Epub 2017 Aug 23. PMID: 28843525

Determinants of behavioral and psychological symptoms of dementia: A scoping review of the evidence.

Kolanowski A, Boltz M, Galik E, Gitlin LN, Kales HC, Resnick B, Van Haitsma KS, Knehans A, Sutterlin JE, Sefcik JS, Liu W, Petrovsky DV, Massimo L, Gilmore-Bykovskyi A, MacAndrew M, Brewster G, Nalls V, Jao YL, Duffort N, Scerpella D. Nurs Outlook. 2017 Sep-Oct;65(5):515-529. doi: 10.1016/j.outlook.2017.06.006. Epub 2017 Jun 16. PMID: 28826872

Incongruence of subjective memory impairment ratings and the experience of memory problems in older adults without dementia: A mixed methods study.

Hill N, Mogle J, Kitko L, Gilmore-Bykovskyi A, Wion R, Kitt-Lewis E, Kolanowski A. Aging Ment Health. 2018 Aug;22(8):972-979. doi: 10.1080/13607863.2017.1337715. Epub 2017 Jun 12. PMID: 28604058

Design and hospitalwide implementation of a standardized discharge summary in an electronic health record.

Dean SM, Gilmore-Bykovskyi A, Buchanan J, Ehlenfeldt B, Kind AJ. Jt Comm J Qual Patient Saf. 2016 Dec;42(12):555-AP11. doi: 10.1016/S1553-7250(16)30107-6. Epub 2016 Dec 16. PMID: 28334559

Caregiver person-senteredness and behavioral symptoms in nursing home residents with dementia: A timed-event sequential analysis.

Gilmore-Bykovskyi AL, Roberts TJ, Bowers BJ, Brown RL Gerontologist. 2015 Jun;55 Suppl 1(Suppl 1):S61-6. doi: 10.1093/geront/gnu164. PMID: 26055782

Caregiver person-centeredness and behavioral symptoms during mealtime interactions: Development and feasibility of a coding scheme.

Gilmore-Bykovskyi AL. Geriatr Nurs. 2015 Mar-Apr;36(2 Suppl):S10-5. doi: 10.1016/j.gerinurse.2015.02.018. Epub 2015 Mar 14. PMID: 25784080

Development and implementation of the Cordinated-Transitional Care (C-TraC) program.

Gilmore-Bykovskyi A, Jensen L, Kind AJ. Fed Pract. 2014 Feb 1;31(2):30-34. PMID: 24639602